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How to get your PWD ID card

Carlisle has been diagnosed as gradually blind since he was five months old. By that time, I was not actually aware that he is already entitled to have a PWD ID card. Part of me also considers him of having no disability at all. As a mother, it kills me to know that he is already blind. But lately, as our expenses grow rapidly, I’ve decided to accept his condition, and get the benefits that he should get.

Every month, here’s what I spend with Carlisle:

MEDICINES – P1,195

CHECK-UP – P3,280

                  Pediatrician – P500

                  Pedia-Neurologist – P500

                  Pedia-Endocrinologist – P600

                  Pedia-Nephrologist – P600

                  Pedia-Rehab – P880

                  Neuro-Surgeon – P200

PHYSICAL THERAPY – P3,520

                  Per Session – P440

LABORATORY FEES – P3,000 – P5,000

     TOTAL EXPENSES EVERY MONTH (HOSPITAL/MEDICINES) : P10,995 – P12,995

Here’s how you can get your or someone’s PWD ID card as per National Council on Disability Affairs, revised as of March 10, 2008.

Who are qualified?

Any person with permanent disability or his/her caregiver can get an application form from any of the following registration centers:

  • Office of the Mayor
  • Office of the Barangay Captain
  • NCDA or its regional counterpart
  • DSWD Offices
  • Participating organizations with memorandum of agreements with the Department of Health

What do I need?

Below are the things that you need when you’re applying:

  • Fully accomplished application form
  • Two 1″ x 1″ picture with his or her signature or thumbmark behind
  • Clinical abstract duly signed by any licensed private or government clinic or hospital-based physician

As per my son, we brought a signed clinical abstract from his pedia-neurologist.

How do I apply?

The applicant brings application form and clinical abstract to the nearest City of Municipal Health Office or its satellite offices or stations at the barangay. In our case, I and Carlisle went to Quezon City Hall’s Social Services Development Department (SSDD). See the full list of issuing offices here.

The receiving health office shall screen and perform the necessary medical and other allied medical assessment they deem necessary at no cost to the applicant for the accuracy of the entries with the actual and permanency of the condition of the PWD. If PWD is not ambulatory, the receiving health officer shall do a home visit to validate the entries and disability. If entries of the application form and clinical abstract match the actual health condition of the PWD, the form with all attachments goes to the Health Officer of the Main City or Municipal Health Center.

The City or Municipal Health Officer shall fill up the certification form which shall be designed, reproduced and archived by the City of Municipal Health Office and shall contain but not limited to the following minimum information.

  • First Name, Middle Initial and Last Name of Applicant
  • PWD Diagnosis Complete
  • Address
  • Birthday
  • Gender
  • Father’s Name
  • Mother’s Name
  • Control Number
  • Physician’s signature over Printed Name and License Number

The City or Municipal Health Officer shall affix the control number on the certification form and application form and sign the certificate of disability. The City of Municipal Health Officer shall then enter the duly signed certificate of disability to the Philippine Registry for Persons with Disabilities that can be loaded from the DOH National Office Website. The applicant or care-giver shall bring the duly approved application form and certificate of disability to the City or Municipal Social Welfare Office or NCDA for issuance of the identification card.

What if I am declined of the application?

Applications that were disapproved shall be advised regarding the deficiencies and shall be allowed to reapply until complied. The nearest local Social Welfare Office or NCDA may screen applicants further and require a social case study if warranted. As to the disability that is not apparent, the establishments may ask from the PWD additional documents as proofs as to his/her disability.

How long is my card valid?

The ID card issued to the PWD shall be valid for three years only for the purpose of issuing identification cards. The first issuance shall be for free. While its renewal due to expiration, loss or damage, the issuing authorities, Mayor, Barangay Captain and NCDA shall charge minimal fee for the new ID card.

What are the benefits that I can get?

Here are the benefits one can get if they have the PWD ID card according to Republic Act No. 7277, otherwise known as the “Magna Carta for Disabled Persons, and for other purposes.”

  • Persons with disability are entitled to  at least 20% discount to the following:
      1. all establishments relative to the utilization of all services in hotels and similar lodging establishments; restaurants and recreation centers for the exclusive use or enjoyment of persons with disability
      2. admission fees charged by the theaters, cinema houses, concert halls, circuses, carnivals and other similar places of culture, leisure and amusement for the exclusive use or enjoyment of persons with disability
      3. purchase of medicines in all drugstores for the exclusive use or enjoyment of persons with disability
      4. medical and dental services including diagnostic and laboratory fees such as, but not limited to x-rays, computerized tomography scans and blood tests, in all government facilities, subject to guidelines to be issued by the Department of Health (DOH), in coordination with the Philippine Health Insurance Corporation (PHILHEALTH)
      5. medical and dental services including diagnostic and laboratory fees, and professional fees of attending doctors in all private hospitals and medical facilities, in accordance with the rules and regulations to be issued by the DOH, in coordination with the PHILHEALTH
      6. fare for domestic air and sea travel for the exclusive use or enjoyment of persons with disability
      7. public railways, skyways and bus fare for the exclusive use and enjoyment of persons with disability
  • Persons with disability are entitled to five percent discount on groceries like basic necessities and prime commodities.
  • Persons with disability will have educational assistance for them to pursue primary, secondary, tertiary, post tertiary, as well as vocational or technical education, in both public and private schools, through the provision of scholarships, grants, financial aids, subsidies and other incentives to qualified persons with disability, including support for books, learning materials, and uniform allowance to the extent feasible: provided, that persons with disability shall meet minimum admission requirements.
  • Persons with disability will have the same benefits and privileges given by the Government Service Insurance System (GSIS), Social Security System (SSS), and PAG-IBIG.
  • Persons with disability will have express lanes in all commercial and government establishments; in the absence thereof, priority shall be given to them.
2014-08-08 12

Carlisle’s PWD ID card.

Since we already have our PWD ID card, our expenses might go down to:

MEDICINES – P956

CHECK-UP – P2,620                 

               Pediatrician – P400

               Pedia-Neurologist – P400

               Pedia-Endocrinologist – P480

               Pedia-Nephrologist – P480

               Pedia-Rehab – P700

               Neuro-Surgeon – P160

PHYSICAL THERAPY – P2,880

               Per Session – P360

LABORATORY FEES – P2,400 – P4,000

     DISCOUNTED TOTAL EXPENSES EVERY MONTH (HOSPITAL/MEDICINES):

                                P8,900 – P10,456

With the PWD ID card, we will be able to save at least P2,000 on his hospital expenses only! What more on the basic commodities, fares, and all? I would really be a great help for us two.

Want to know more about your PWD ID? For more inquiries, you can call the National Council on Disability Affairs at (632) 9298879, email council@ncda.gov.ph or visit http://www.ncda.gov.ph.

 

xx, Mayu ♥
8 August 2014; 02:22 PM MNL

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REPOST : Dear Parent of a Sick Child (letter #3)

Part three. And I still cried for the same reason over and over. I will get through with this. For now, just read on and be inspired. :)

Dear Parent of a Sick Child,

It’s been a while, hasn’t it?  It has been too long since you laughed with authenticity, thoroughly enjoyed a lunch date without that cloud of despair hanging over you, or even, been able to swallow your meal without effort?  People are telling you that it will be okay, but somewhere in that place of despair, you are wondering if things will be okay.  You know now, Parent of a Sick Child, that things will never be the same.

You look at the other kids in the neighborhood or in passing at the store. You hear their laughter. You feel their joy. You see their smiles, and then, your thoughts are pulled down with the image of your own child fighting for a sense of normalcy beyond illness.

You get angry. You spit at the curse of illness. You want to rage at the reasons, and yet, you cannot find one. Nothing makes sense anymore. Your child, once vibrant, healthy, and in love with life, is now fighting to stay out of Heaven.

You have pleaded with God. You have demanded an answer. Your anger has sprouted wings. Still…you know that anger breeds despair. You do not want despair to knock on your door. Instead, you want clarity.

You lift your child’s name up in prayer. You ask others to do the same. You question,

“Why my child? Why?  Please….WHY?”

And then, you return to reality. You calm down. You regain that strength that has kept your feet moving. You meet with the doctors. You discuss options. You grab your child’s hand. You wipe away tears while holding your own in. You listen to others who agonize for your child. You hug. You comfort. You absorb the pain.

Dear Parent of a Sick Child, has anyone thanked you lately? Has anyone told you that he or she doesn’t know how you do it? How do you continue to get up everyday and put on that smile of fortitude? How do you keep on holding down a household, a job, and other responsibilities?

Maybe, just maybe, there have been times when you do not even know where you gather your strength from. Perhaps, you wonder when your grit will be no more. You fear caving in to your sorrow. You know, though, that you will never show the collapse of your armor to anyone else.

You seek the quiet corners of the hospital, the silence of your car, or the closed doors of your home. In those places of solitude, you let it all out. You wail. You wonder. You wish for a return to life before the sickness.

You want your child to live a life beyond all of this.

Dear Parent of a Sick Child,

Cling on to that spunk that is getting your child through the tough days. Pray with continual perseverance. Be present. Demonstrate determination. Speak of strength. Whisper your mighty wishes. All of this does not, and will not, ever go without notice.

Thank you, Dear Parent of Sick Child, thank you.

Thank you for not giving in, giving up, or walking away.

Thank you for the sleepless nights,

the continual nearness,

the courage to wipe away the tears of others,

the advocacy for what needs to be done,

the non-dented armor you wear every day,

and,

the light of hope you shine each day.

See original post here: Dear Parent of a Sick Child (Letter 3)

xx, Mayu ♥
29 June 2014; 03:02 AM MNL

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Lord, Why Me?

“Blessed is a man who perseveres under trial; for once he has been approved, he will receive the crown of life, which [the Lord] has promised to those who love Him.” – James 1:12

On my way home this morning, I saw this blind woman beggar who’s lurking in the streets. Usually, she has someone with her to go from vehicle to vehicle to ask for some coins from the passengers. The only different thing today was – SHE IS ALONE. Then I thought, where is her companion? What if some vehicle bumps into her and just run without helping her? Then I just realized that my eyes are getting wet, and I’m already thinking of my son.

2014-03-05 10.21.40

Carlisle has been diagnosed as gradually blind when he was five months old, a month after he was diagnosed with Viral Meningitis. I was devastated, and I automatically thought, how can I raise him well? Can I handle this? Is my life enough to be with him until he becomes fine on his own? How can he be when I’m already gone? Who will help him when I’m not here? These questions made me cry every single night while I’m watching him sleep.

What did I do? Did I take anything unprescribed that may result to this? I can’t help but blame myself. well then, who else? Who have raised this child for nine months in her womb? Who have taken food and drinks while this child is inside her body? No one else but me. I’ve got no one to blame but myself. I can’t blame the guy who left me hanging while I’m pregnant, nor I can’t blame my parents, nor the doctors that made me believe that there’s no problem with my child.

People who know me always say, “God will not give you this trial if He knows you’ll not going to make it.” Then I weep. It makes me ask everytime, Lord, why me? I haven’t done good enough for you to think I’m strong. I don’t usually obey my parents. I start fights with my sisters. I’m not faithful with my partner. I don’t give importance to my work. Lord, why me? You made me a single parent, then You gave my son such rare kind of disease. Lord, why me?

This question just made me realize that Lord gave me this kind of trial for me to be strong enough to face anything. Lord chose me because He loves me enough to guide me with nurturing my child. Lord let me have this experience for me to know that I am blessed enough to be surrounded with people who’s willing to be there for me and my child. Lord has chosen me to be one of his blessed children to bring such a special child to this world.

In Job 1:21, it says, “Naked came I out of my mother’s womb, and naked shall I return thither: the Lord gave, and the Lord hath taken away; blessed be the name of the Lord.” Job lost his houses, his riches, his cattle, and even his own children, yet he still chose to praise God for His goodness. Even if Lord is giving us trials and endeavors in life, we should be able to give thanks to Him, because He gives us lessons that we thought would not be possible and in the end shall make us each of a better person.

Lord will always be with me throughout this battle, because He loves me. And that should be enough to be strong.

xx, Mayu ♥
11 March 2014; 08:14 PM MNL

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We’re Not Giving Up on You, Craniopharyngioma!

We had our scheduled follow-up check last Monday on Carlisle’s pediatrician, ophthalmologist and neurosurgeons. Though we weren’t able to catch his pediatrician because we were caught on a heavy traffic on our way to the hospital.

Carlisle playing at my sister's house. :)

Carlisle playing at my sister’s house. :)

Next stop, to his neurosurgeons. We went to the operating room as per instruction relayed to us by my uncle (who works at the same hospital as a radiologic tehchnologist), maybe they have an ongoing surgery. Nothing new, they still told me that surgery is the only way to lessen the tumor for now. Since Carlisle was declined for radiation therapy because he’s too young, what they want to do is to perform another surgery as soon as possible because they’re not sure whether the tumor will grow as slow or as fast as they can imagine.

Carlisle's MRI last March 2013.

Carlisle’s MRI last March 2013.

Craniopharyngioma is a cystic tumor, meaning that they consist of a membrane wall surrounding a hollow, fluid-filled, or semisolid space. The inner space of the tumor is filled with a hazy brown liquid that shimmers because cholesterol is present in crystalline form. Although considered benign, craniopharyngioma exhibit locally aggressive behavior and will invade surrounding structures if left untreated, according to Barrow Neurological Institute. So the liquid part is the one that is being drained to Carlisle’s ommaya reservoir bi-weekly. The solid part is the one that is being taken out through surgery. As what his neurosurgeons told us, the part that is growing now is the solid one. They need to stop draining fluid out of Carlisle’s brain because they need it for the operation, and as well, nothing else will be drained.

Would you blame a mother like me to have second thoughts on this situation? It was just been less than a year since Carlisle had his first major operation, and I almost lost him because of that. It pains me to know that he needs to undergo another operation in less than a year, and that he needs to feel those needles again on his skin. I asked his doctors if we could possibly delay it, or wait for another year, but their point is the speed of the tumor’s growth which is unknown. Our final decision is to have another MRI session and check whether the tumor grew again, and we all agreed to it.

Carlisle is unstoppable! :)

Carlisle is unstoppable! :)

On the other hand, his ophthalmologist told us the same thing, that his optic nerves are still pale to work. Would it still work? Sometimes it depends on the age of the person affected, the number of years that the nerves are crushed. Any vitamins that we can give to energize his nerves? None. Same thing. Same old story.

Though we have received devastating news this week, those are washed away with all the good things that all happened to us. Last Monday, March 3, 2014, Carlisle’s story was featured by one of his page followers and Manila Bulletin columnist, Kathrina Yarza. Kathrina also has a tumor in her brain and fortunately, it’s been stable for eight years now. Like Carlisle, the tumor caused her to lose one of her five senses – she became deaf. We were very much thankful to Kathrina who became our bridge to people to raise awareness against brain tumor. Yes, it’s not just for adults, even babies can have it. You can also read the article here.

Carlisle's plea for help.

Carlisle’s plea for help.

Since the day that I’ve set up our Facebook page (which is February 20,2014), we now have 587 likes from people not only from Philippines but also from other parts of the world. It was so touching though that there are still kind people who would helped someone they don’t directly know. I mean, it was so relieving that people will send you messages of hope and faith every day. That’s one of the things that inspire me to go on with this battle. And I really thank all these people for their warm support.

Screenshot 2014-03-07 16.13.24

Currently, we have raised 5.29% from GoFundMe alone, and 17.13% of our $7,000 goal in total. I included all of the donations, my spare money every pay from my full time work, my salary from my freelance work, and my loans from our local government system. I’m so happy that I don’t have to think about his hospital funds. We can do laboratory requests by his doctors immediately, and even his MRI can be done in time.

shirt campaign

We have also started our fundraising campaign for Carlisle’s hospital funds. We currently are selling shirts in all sizes. Thank you to Noreen Galvez for making this possible and to Diseño Dih-zenyo for printing our shirts. Other sizes are also available by request. For orders, kindly send us a message at our Facebook page, email us at berma.mr@msn.com or text us at 63939 883 6164 along with your preferred shirt size and quantity.

Shirt design. :)

Shirt design. :)

We also have a safer way to donate. You can now send your donations for Carlisle on his Facebook page itself. Just click the Donate tab and it will be sent automatically to our PayPal account. For other means of donation, check the image below. If you have spare time, please do share this as well.

aaa

In 24 days time, Carlisle will be two. I’m so proud that I have raised such an amazing kid. I just wish we get passed through this as early as we can, so he can live a better life. I love you, son, more than anyone knows.

 

xx, Mayu ♥
7 March 2014; 05:38 PM MNL

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Carlisle For Another Surgery?

Well, yes, you’ve read it right. That’s what his doctors want to do with him.

On my last post, UPDATE: What Happened To Today’s Check-Up, we were referred to a pedia-oncologist by his pedia-neurologist for further testing. When we got there, she just conducted a simple interview about Carlisle’s medical history. She even said chemotherapy would not be an option for Carlisle since the tumor is designed to not respond to it. She also said that radiation therapy is advisable to at most three year old children. She said they need to talk about it with her fellow oncologists in a conference whether they will allow us to go with radiation on March (which is his 24th month) or wait until he’s three.

Still a happy baby. :)
Still a happy baby. :)

So last Saturday, after waiting anxiously for two weeks for his pedia-oncologist’s advice, I decided to seek her pedia-neurologist’s words about what they’ve talked about in the conference, since she was also there according to one of her fellows. We arrived at her clinic by 12:30 PM and was checked past 5:30 PM already. We were her 13th patient. Her name is Dra. Antonia Moral – Valencia, by the way. She is the most reliable doctor that I know of, she patiently answers all my questions and expresses sympathy in our situation. She even let us have free consultation and says just add it to our funds.

Immediately, when she saw us, she asked if I already had a word with Carlisle’s neurosurgeons. It was supposed to last Monday, January 17th, but they keep on passing us to different doctors until we were not able to talk to anybody. My heart pumped like hell and I don’t know why.

“Hinihintay na sya ng neurosurge ah,” (His neurosurgeons are waiting.) she said. I asked why. And she said that what they’ve talked about in the conference was another surgery for Carlisle because the cyst grew unexpectedly faster than they thought.

“Wala na po bang ibang option?” (Are there no other options?) I said. Another surgery? A big no, my mind said. I don’t want to put his life at risk again. I was already traumatized when I saw him in seizure before he was transferred back to PICU. Yes, I’ve read that craniopharyngioma is a tumor that may come back even after surgery and radiation therapy. But I never thought it can be faster like this.

According to her, Carlisle was declined by hemo (I don’t know what they are for) and oncology because he’s too young to undergo radiation therapy. The last resort that they have is another surgery, to remove a part of the growing cyst. As per research, no one knows how big and how fast it can grow. Also, radiation therapy may be suggested if all visible tumor cannot be removed. That’s what the original plan is. According to American Brain Tumor Association, in children younger than three, radiation may be delayed by the use of surgery or hormone therapies.

Can the bi-weekly aspiration of fluid from his head be a little help to delay the surgery? Are there other medicines that I can give to him that can relieve him or stop the tumor from growing? Those were some of my questions, in teary eyes. Thank God, she understands why I don’t want Carlisle to undergo surgery again. It’s just eight months since his first major operation that almost took him away from me. I know this is for the best, but as long as there are other options, that I’m sure there will be, I don’t want to risk his life again.

She just said that she understands me, and will seek opinions from her fellow doctors that handle Carlisle’s case. If they will say yes for the postponement of operation, we will have another MRI procedure by April and continue his bi-weekly aspiration of fluid from his brain caused by the cyst. I do hope we would not end up to another surgery because it will kill me.

Happy to be with him. :)
Happy to be with him. :)

With that, I decided to find more ways of how I can get funds for Carlisle. Aside from my work as a customer service representative which is my main source of income, I also am a part-time freelancer and an online shop owner. That would not suffice. I gambled my chances and messaged every Facebook owner that I know can help us. In God’s grace, Hope For Coby‘s page admin, which is the baby’s uncle, replied and shared some tips on how we can spread awareness about Carlisle.

2014-02-22 20.23.44-1

I created Carlisle’s own Facebook page, Even A Cent Counts For Carlisle Von Patrick, and in just three days, we already got 403 likes and a lot of messages and donations. I was so amazed that I almost cried for all the help that we are receiving. Let’s do hope and pray that we have a positive news for the next follow up. Please like and share the page as well.

God bless everyone! Ciao! :’)

 

xx, Mayu ♥
24 February 2014; 10:27 PM MNL

1

UPDATE: What Happened To Today’s Check-Up

2014-02-03 12.18.08

Hello everyone. Just giving you an update on how’s everything going on with Carlisle’s health and what his doctors say about him. So we had a whole day of follow-up checks again for today (actually for every second Monday) to his pediatrician, ophthalmologist, neurosurgeons, and pedia-oncologist.

PEDIATRICIAN. I’ve decided to have Carlisle checked by his pediatrician every month for me to be sure that he’s doing fine and nothing’s wrong. So far, everything’s fine with his health, nothing unusual has been heard from his lungs, ears and throat is clear. We are scheduled to take tuberculin test today, because I was worried about his previous X-ray tests. It always returns as him having some lung infection close to primary or something, which results us for taking a whole week dose of antibiotics. I know for a fact that those doesn’t taste good, I used to throw my antibiotics in the sink when my mom wasn’t watching. We were then scheduled for a follow up on Wednesday for test reading.

2014-02-03 12.18.03

OPHTHALMOLOGIST. Gee, we missed the schedule. :( This was supposed to be a reading session of his recent MRI to know if his eyesight improved.

PEDIA – ONCOLOGIST. Instead of the 4:00PM schedule, his doctor’s secretary called us to go in an earlier time because the doctor has a meeting and might not be able to attend to his scheduled checks. So we went to the clinic, and talked to her about what our pedia-neurologist told us to do. She said chemotherapy is not an option, because Carlisle’s brain tumor is designed not to respond to it. We’re only left with radiation therapy then. As per the doctor, radiation indeed should be done on kids three years old and above, which is the advisable age. But then, it can be done as early as 24 months (two years old) but not advisable because this is the time when the brain is actually growing. She said they need to talk about it with her fellow oncologists in a conference whether they will allow us to go with radiation on March (which is his 24th month) or wait until he’s three. Tomorrow would be the result on what they’ve talked about. I hope it’s for the better.

MRI image last December 2013 showing a sudden decrease of the tumor size.

MRI image last December 2013 showing a sudden decrease of the tumor size.

2013-12-28 10.52.28

NEUROSURGEONS. They are the ones that moved me today. They declined the usual bi-weekly drain from his shunt because they need to wait for what the pedia-oncologist will say. They told me the same thing that our pedia-neurologist told us: they are not satisfied with the size that the tumor had reached. They said it might be possible that the size have increased again – they won’t know since we were not able to perform a post MRI session when we’re still confined due to lack of budget. They just instructed me to bring Carlisle to the hospital whenever I noticed that his usual self decreases its energy. That’s the time that they will drain from his shunt.

What a long tiring day. I still have work to do. First shift of the week! Another week without me by his side when he sleep. Haaaay. Let’s do this!

xx, Mayu ♥
3 February 2014; 09:59 PM MNL

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REPOST : Dear Parent of a Sick Child (letter #2)

So here’s the second part. Worth reading, and will inspire sick child parents like me. :)

Dear Parent of a Sick Child,

You are still there, aren’t you?  You are still at the hospital awaiting for results, for your child to wake up, and for any glimpse of good news…anything that will settle your heart to the hope of a new day without sickness.  You are tired, but you do not want to show it. You put on a strong face, but you wonder sometimes if you can keep this costume of strength on.

You have found yourself to be a superhero of sorts,  During those quiet moments, you feel like Clark Kent.  You feel vulnerable, weak, and absolutely human.  Yet, during those strong moments where your sick child is watching, you adorn yourself with that cape of strength that you have uncomfortably worn for a while now.  You become Superman or Superwoman.  You stay up all night watching the monitors next to your child.  You make a list of questions for treatment options, expectations, and possibilities.  That brave mask you wear that shows no sign of weakness or vulnerability is rarely taken off, especially around your sick child.

Yet, you sneak off to the isolated corners of the hospital where no one can see you.  You weep with the agony of a desperate heart.  You cry out, “Please, please. Heal my child.” You bargain with God.  You tell Him that you would gladly trade positions with your child.  You would shorten your life in order to lengthen the life of your baby.  You, dear parent of a sick child, are a weary soldier.

Dear Parent of a Sick Child, be still now.  It is okay for you to weep in the quiet corners of the hospital, and to bargain about extending your child’s life.  It is okay for you to yearn to swap places with your sick child.  You are only human, you know.  But….

You are a warrior.  You hold your child with an incomparable measure of strength as he or she gets one more treatment, one more I.V. that cannot seem to find a vein, and one more painful test. You stay up all night in order to catch your child opening his or her eyes for the first time in several weeks.

Your shield has become one of hope.  It may get dings in it, but you never stop carrying it.  It has become your defensive weapon against those who bring you bad news.  Although dampened at times, it still reflects a light that others catch when around you.

You, parent of a sick child, are one of the toughest kind of parents.  You are a survivor of a war waged on the one person you would give your life for.  You did not ask for this.  You did not expect this.  You were barely able to stand when you received the news that broke your heart, but, you stood for your child.

Yes, you are a Superhero of sorts.  You are a warrior.  You wear the mask of bravery, the cape of strength, and the shield of hope.  

Dear Parent of a Sick Child, do you want to know something?

Your child knows you are there.  Your child sees your brave face.  Your child does not know that you disappear to the isolated corners of the hospital.  Your child does not realize that your knees buckled at the devastating news.  Your child also does not know that you bargain with God on his or her behalf.

Do you want to know why?

Because while you are busy being a non-glorified superhero, you step aside so that your child becomes the warrior, the fighter, and the one who receives the praise for being strong.  

Dear Parent of a Sick Child, your kind of strength only comes around every so often.  Most parents will (thankfully) never know the depths of exhaustion mixed with a sliver of hope that you have gone through.

Sneak off to the quiet corners of the hospital if you need to.  Pray, and plead with God about the life of your child.  Advocate for treatment options, keep your mask of bravery, cape of strength, and shield of hope on.  

For your child…

the one you pray over,

the one you bargain for,

the one your knees buckled in despair over,

the one you put on a mask of bravery for,

the one you wear your cape of strength around,

and the one you carry your shield of hope for,

will also wear a mask of bravery, a cape of strength, and a shield of hope.

Dear Parent of a Sick Child, you are a warrior.

See original post here: Dear Parent of a Sick Child (Letter 2)

xx, Mayu ♥
31 January 2014; 04:59 PM MNL